Sara Feigenholtz

Amends the Department of Healthcare and Family Services Law. Requires the Department of Healthcare and Family Services to conduct a statewide one-year pilot program that studies the prevalence of cholestatic liver disorders associated with increased risk of end-stage liver disease among women ages 35 through 64 who are recipients of medical assistance. Requires the Department to collect the following information on study participants: (1) key demographics such as age, genetic predispositions, pre-existing conditions, and lifestyle factors that elevate the risk of developing cholestatic liver disorders; (2) the number or percentage of study participants who, despite being identified as high-risk, do not follow through with referrals or treatment recommendations; (3) the number of study participants who avoid referral and follow-up care or engage in treatment avoidance; and (4) any other relevant information or issues identified by the Department. Requires the Department to compile a report on its findings at the end of the one-year study and include (i) recommendations on how to increase awareness of cholestatic liver disorders through screenings, genetic testing, and collaboration with patient advocacy groups to raise public awareness and (ii) an analysis of strategies and funding to increase screening and genetic testing for cholestatic liver disorders. Provides that the Department shall submit the report to the General Assembly no later than December 31, 2028. Effective immediately.